For people whose restless legs got worse on the medication that was supposed to help. Plus everything else about RLS, PLMD, sleep-related movement disorders, and other neurological conditions that affect movement in the arms and legs. Free to use, and open to anyone.
Groups
Augmentation
When pramipexole, ropinirole, or rotigotine stopped working or made things worse. This is the group for augme…
Restless legs
General discussion about restless legs syndrome.
Sleep
Sleep, insomnia, and getting through the night.
Periodic limb movement disorder
Periodic limb movement disorder (PLMD) — repetitive limb movements during sleep, and where it overlaps with R…
Alternative Treatments
Approaches and non-mainstream options outside standard medical care that members try for relief.
Home Remedies
What people try for restless legs and what works - or doesn't work - for them.
Share Your Story
Everyone here has a story worth telling — when your symptoms started, what has and hasn't helped, what you wo…
- I finally found a neurologist who also has RLS and has tried all the things I've tried. She totally "gets" me and that's been amazing! As I discussed my sympto…
- If you're new here, welcome. A good first post: when did your symptoms start, and what's one thing you wish someone had told you early on? Even a short version… Bridgett Palmer The first time I can remember struggling to sleep with that hard to describe, uncontrollable discom… 20h ago
- What's the strangest thing you've tried to get relief? No judgment here. Sometimes the odd ones are where people find something that helps. Bridgett Palmer I was at a residential treatment facility for an eating disorder and we could not exercise. We had … 20h ago
- Has anything actually reduced the limb movements at night for you? Please share what helped, since PLMD advice is thin on the ground.
- RLS and sleep feed each other: bad legs wreck the night, and a short night makes the next evening worse. What has actually helped you break that loop, even a l…
- If you've found a doctor who really gets RLS, how did you find them? Please share what worked, since "find a good doctor" is easier said than done.
- If you could go back to the version of you who was first handed a dopamine agonist, what would you want them to know? I'd like to gather the things we all wish…
- When you explain RLS to someone who doesn't have it, what actually gets the feeling across? "Uncomfortable legs" never seems to land. Please share the descript…
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