When you explain RLS to someone who doesn't have it, what actually gets the feeling across? "Uncomfortable legs" never seems to land. Please share the description that finally made someone understand.
For anyone whose RLS started during pregnancy: did it settle afterward, or stay? Please share how it went, since this seems to be a common starting point.
How do you handle long stretches of sitting still, like a flight or a long drive? Those situations seem to set a lot of people off, and I'd like a list of what works.
How long did it take from your first symptoms to actually getting the words "restless legs syndrome" from a doctor? I have a feeling the answer is "years" for a lot of us.
What finally made you take your symptoms seriously enough to see a doctor, rather than just living with it? I think a lot of people wait far too long, and I'm curious what the turning point was.
Iron comes up in almost every RLS conversation. If you're comfortable sharing: what was your ferritin when it was tested, and did raising it actually change your symptoms? Please skip anything you'd rather not share publicly.
